Sorry!

Sorry I am horrible about this blogging stuff :) hopefully ill learn to be better at it. So to catch everyone up on what is happening. It has been comfermed that Rykert does have Duchenne Muscular Dystrophy they have him on a steroid that will hopefully slow down the progress of it making it so he can walk a year to two years longer than if he was not on it, which can help lengthen his life about  5-10 years longer than without. it does have some drawbacks like giving him tummy aches so now he is also on a med to help with that and has to have lots of calcium and vitamins everyday so he stays healthy. in the end its worth it if it means he can walk and live longer.

On March 2nd he got a wish granted by Make A Wish  so we went to Disney World and had a blast we stayed at a little village ment for kids like ry called Give Kids the World in a beautiful condo like house that Ry called his house and he keeps asking to go back to "His House" Lilly got to meet her boyfriend Mickey Mouse and Ry is now an official pirate thanks to Captin Jack Sparrow.

As of now Ry is doing pretty good we have learned to not let him go down the stairs by himself or if he is he now knows to go down on his bum since he sometimes falls down them luckly only gotten bruises and not more seriously injured. Well I will post some pics from Disney world later now im gonna go to bed. Night all!