horrible me

ok so I am really really bad at blogging!  I know I promised pics from last yrs disney world trip and Ill do that along with other pictures hopefully soon. the kids and I just moved so itll be after I have everything settled. Now on to Rykert, he is getting so big! Ry will be graduating from his Kindergarten on May 31st  I cannot believe it! He is doing really well on his medication and has not needed leg braces yet yay! There is a new medication study that will probably start next year that they are wanting to try on Ry when its approved for human testing that wont cure the problem but can help delay it even more so we will have to see on how that will work, if it improves and lenghtens his life  I am all for it. Well that is all I can think of right now I will try and be better but till next time Peace, Love, and Hugs :p